Happy my non Birthday

Today I decided to celebrate my non-birthday. It was a Sunday when my whole family was there, or almost, and I wanted to give myself a cake because I had a diagnosis, because now I know what treatment awaits me and what path I will have to take, because my last birthday I went to the hospital in pain and because it’s always nice to celebrate.

The rare disease has a name, chronic idiopathic pachymeningitis of an autoimmune nature. It is not known how it developed, nor why … but after two years of wrong diagnoses, hospitalizations, head surgery (in order a mastoidectomy, a cochler implant, two biopsies of the meninges) I know what I have …

And so I celebrate my non-birthday with a sponge cake filled with Chantilly cream and garnished with hazelnut cream. Amazing!

Now comes the fun. Yes, because now (in ten days) I start the treatment, which will not be a walk in the park, in fact I would say the opposite. At the moment the side effects that could arise are quite significant … but let’s not think about it now, now is the time to enjoy being well.

With the celebration of the non-birthday I also fixed the haircut for the next few days, and a fairly significant visit to my beautician (faith), a visit to the studio to check a few things and see friendly faces live.

Then every now and then I get discouraged, in short, this disease happened to me without a reason, and for two years it has chained me to pain and fear. It is true there were times when I was fine, but she was there .. she did not get out of the way. Now, however, we know what it is, we have a precise way to go. And then it fixes … if there is something broken, it gets better, like kintsugi.

I go ahead, straight towards the goal line. “Focus the goal line Meggie” as a quote from the movie “Runaway Bride” (where Lieutenant Stabler plays Julia’s boyfriend, abandoned at the altar, and yes … for me it’s Stabler anyway and not Bob).

And certainly there will be occasions to celebrate another non-birthday.